The coordinator of my PA service rang me this afternoon. She rang to ask me if I had any family support. I said usually I would but right now my moms health isnt great, and so she cant be there for me like she usually is, as she’s cocooning. My dad is helping her, and he’s also not in the best of health himself either. He’s doing what he can for mom, getting the groceries, meds, etc. She told me that she’d get back to me but basically the agency who provides my PA’S have decided that the PA’S can only do essential things like grocery shopping etc. They basically cant come into the service users home for long periods. I have 7 hours a week, but she said I may have to cut down my hours while the coronavirus pandemic is going on, I may have to cut them to once a week, for an hour or 2 max. I’m baffled. I’m vulnerable, I’m blind, I need help, I need help with the housework, shopping, etc. Now it looks like I’ll only have help with grocery shopping. Dont know what I am supposed to do! Its baffling! You’d think they’d help the most vulnerable, not cut my services? Its so weird? I mean I suppose its all about trying to stop the spread of the virus. I know people have to be safe. But this? I know if all comes to all I’ll just have to go to my mom and dads house, but I really cant afford to do that unless it becomes absolutely necessary. I need my wifi, for my therapy sessions, I need it for work, I need the landline phone to be able to talk to dr. Barry, and actually Dr. Barry is getting zoom too soon so we’ll be probably using that for our appointments. This is just not cool. I am annoyed and frustrated!
carol anne
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