PA stuff

so i’ve emailed the people who provide my PA service this morning. I was clear in the email about what I need in a PA going forward.
The person in the office said they’d try their best to get me someone that will suit my needs. Kristen finishes with me on Thursday. I dont want to be without a PA but I fear I may be without someone for a couple of weeks.
I told the office I need someone who can provide a driving service if that is possible. Otherwise it will get expensive paying for taxi’s to and from the grocery store. Yes we pay the PA for gas but what we pay the PA is minimal compared to the expense of getting a taxi.
So we shall see. Only time will tell if I get someone who drives or not.
I really am hoping for a good match. Who I get is important to me. Its important I can relate to them and I am able to get along with them. Their personality traits are important to me.


a sunday ramble

i’m having another lazy day. not up to much. woke up early, actually was awake during the night, at like 5 AM. got up for an hour went online, and then was able to go back to sleep for another hour or so. woke up at 8, because nitro decided he was going to lick my face until I got up 😛 he’s so funny he just wanted to see who was out in the kitchen he’s so nosey hahahaha 🙂 so i got up and fed him and then i was starving myself so i ate breakfast. i made yummy hot buttered toast, i love it when the butter is melted on the toast, its my favourite way to eat it. i havent done anything else this morning except showered. my dads brother is here the one thats in a nursing home, its his birthday today and so he came to my parents house for dinner. its my dads birthday tomorrow. there is 3 years between him and his brother, his brother is older by 3 years, my dad will be 64 tomorrow. i gave him money, because i didnt know what else to get him, he’s not a gifts sort of person, he prefers the money. i’ll just relax for the rest of the afternoon, i’ll be going home to my own house around 6 PM. and of course x factors on tonight, i’ll be glued to it. i’m totally addicted.
do any of you watch x factor?
what are you doing for your sunday?
carol anne

one week to go

so i only have one week to go before we start the independent living skills course. with each day that passes i get more and more excited. this is a great opportunity. not only do i gain skills but i am in a supported environment with other disabled people and staff to help me. this is great and i think we will really benefit from being there. i know the staff arent trained in handling mental health difficulties, but they do know we have did and ptsd, and they are ok with it. we can tell them things like that we feel anxious, etc. we dont have to tell them the full extent of things if we get triggered, so as not to freak them out completely. im hoping though we dont get triggered too often. there are two other people there who have mental illnesses as well. both of them are in wheelchairs. i know they struggle because they both told me. i’ve been preparing for going, getting laundry ready, fixing up my house etc. the great thing is they have transportation there, so it means i will be able to keep my apt to see dr. barry because they will take me there. I will also be able to continue my volunteering as well as part of the course. I was delighted about that. I didnt want to give up volunteering! so yeah just so excited. there is also a nervous anxiousness running through my body!
carol anne


i cant quite believe next week will be my last week with my current pa kristen. we’ve worked together for a year and a half.
it will be sad to lose her. she is a really nice person. i’m nervous about who will replace her, will i like them, etc.
we shall see i guess. only time will tell.
change is hard. i dont much like it.
oh well, i will just enjoy the last couple of days with kristen. we’re still gonna keep in touch on facebook, and we’ll still meet up for coffee and stuff like that.

tired sorta wednesday

I’m really tired today. I just woke up at almost 4 PM. I slept for 2 hours. That will make up for my waking up at 4 AM this morning.

I was going to go to the basement clug today because there was a knitting and crochet group on. But then after I saw dr. Barry and Mark I was tired so just went home instead.

My home help will be here soon. Once I start the independent living skills course I will no longer have home help. I don’t mind though. I am looking forward to being able to cook everything for myself. The home help I have now just helps with cooking.

I’ve been missing doses of meds again lately. I am making a conscious effort now to remember to take them. I know its important. Sometimes I miss my night dose. I tend to be ok taking the morning dose. I haven’t told Dr. Barry just because meds haven’t come up in our appointments lately.

I received a very nasty email today. someone who reads my blog sent me an email. They said I am crazy, and I am way too attached to my therapist, and its creepy, and if they were my therapist they’d take out a protection order against me. I ignored it and just deleted it. I’m not even going to entertain it. They are obviously looking for me to respond so they can continue their ranting and hatred. Well, its not happening.

Has anyone else ever gotten nasty emails from people viewing your blog?

I plan on staying home tomorrow. I’ll have my pa in the morning from 9 AM until 1 PM. I plan on doing housework. I’ll probably go to my parents tomorrow and stay there until Sunday. I was meant to be going to Dublin on Saturday for an advocacy meeting but I decided not to go. It would be a very long day and I’d have to get up super early to get the early train. I can still become a member of the advocacy network that’s being set up without going to the actual meeting. Its run by the national council for the blind here in Ireland.

So what are your plans for the weekend?
carol anne