busy day ahead

today I am going to be busy!
I havent slept tonight. probably becausei slept for hours yesterday after therapy. i cant expect to sleep at night if I am sleeping in the day. but it was ok, i did email, read, and listened to music while I wasnt sleeping.
this morning I have an apt to get my 3 monthly shot. its my trevicta shot. for those who dont know trevicta is invega an antipsychotic, but in a 3 monthly shot, I used to take a monthly shot until dr. barry said this would work better. and it has. I’ve had no side effects from it and I especially like that there is no weight gain on it.
so I have to go do that. It wont take me very long. I’m going to get a taxi there and have the taxi wait for me since I’ll only be five minutes in there.
in the afternoon I go volunteer at the cork city partnership. I’m not full time on friendly call. So I’ll be making calls and checking in on people. I love it. I’ll go there at around 1 PM and stay until 5.
Then I have to go to my friend normas house. We have a training session planned. Not sure yet what we’re going to be doing. But I promised her I’d come over this evening since I didnt do it at the weekend. I’ll stay for about 2 hours. I dont have to pay for a taxi to take me there, my taxi’s are payed for by the partnership, but I might get a lift from one of the staff at the partnership and then just get a taxi home.
I’ll be taking Nitro with me when I go volunteering and to normas house but I wont take him this morning whenI go to get my injection.
I just had an amazing hot shower. I was feeling a little anxious and a bit tense and it really helped with that. I feel all refreshed now. Im not dressed yet though. I just made myself some coffee and am drinking that.
Well thats about it for now. I hope you all have a great day today.
carol anne

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Dad got very sick

my dad drank too much and got really sick. he went to bed about an hour ago. he fell asleep and within half an hour was puking his guts up. he tried to get up to go out to the bathroom but he fell on the way out the door. he then tried calling to my mom but she couldnt hear him because she was in the kitchen with the door shut and the music was really loud. so i phoned her and told her he’d gotten sick and she needed to come out to the bedroom. she came out and changed the sheets and wiped up the mess off of the floor. he kept apologising and saying he’d drank too much. he usually can only drink four cans of beer, tonight he’d had 7. so no wonder he got sick. i felt sorry for him. getting sick is not fun. and my poor mom had to clean the mess. i felt sorry for her too. i would not have wanted to do that. he’s gone back to sleep now. moms still up and one of my aunts and my uncle are still here. i just went to the kitchen and made a cup of tea. its 2:30 AM now. i wonder what time they’ll leave at. it should be soon I’d think. im not even tired. i’ve been messing around online for the past little while. not sure if i will even try to sleep tonight, i may not.
carol anne

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finally got some sleep!

good morning everyone 😀
got about 5 hours of sleep.
finally went around 2 AM. turned off my book and lay down hoping for some sleep. it finally happened, although it was a light sleep I got. The wind was howling outside, so much for the good weather lasting? It didnt. Its raining and very windy out there right now.
Its just gone 8 AM and I got up because I woke and once I wake thats it unless I am super exhausted.
Like i said no plans here today. So can just relax and have a quiet morning.
do you have plans today? if so what?
carol anne

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a chill day

today will be a chill day. no goals. nothing to do. just stay home and relax. just how I like it. I need more chill days. It is going to be a stay in my PJ’s all day sorta day.
Yay 😀
It will be a do as I please sorta day as well. Love that 😀
I can stay up late tonight as I dont need to be up early tomorrow.

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todays Dr. Barry apt

so i saw dr. barry this morning. it went well. we talked about meds. she decided to increase my epilem, which is mainly for my seizures but I also use it for my mood. she said she would write an explicit letter to my gp, because since she is not my primary prescriber of that med she wasnt really comfortable reintroducing it. she did, but she doesnt feel to comfortable doing it. i told her my gp hadnt even rang me, he’d just given me the prescription that dr. barry wrote out. so she’s going to explicitly ask him to review me. she put me up to 800 mg a day of epilem. i was taking 400 at night. she also reintroduced my metformin for my diabetes. and the prazosin also at 3 mg at night. she said she’d leave the rest for now. and i’ll be going back to see her in two weeks for my usual apt. she said there was some new paperwork and guidelines now about the epilem. apparently it causes some foetal syndrome and it is not meant to be prescribed for women of child bearing age. i dont really have to worry about it since my ovaries are gone, and I have no chance of becoming pregnant. but she had to tell me anyway, she said that they dont use it for bipolar hardly now, and she only had one patient whose on it for their mood. since mine is primarily prescribed for epilepsy and only used for mood as a secondary med it doesnt really matter, but she still had to tell me. we talked a little around my surgery to remove my ovaries, she wasnt aware I had had both ovaries removed. she apologised about bringing that up since she knows its a topic i dont like talking about since it involves my not being able to have kids. we talked a little about sleep, I told her my sleep is not great lately, that i am getting around 3 to 4 hours a night if I am lucky. she said hopefully the prazosin will help that. we talked about therapy and i told her eileen is pulling back on working on trauma stuff for right now, that we’re going to work on managing overwhelm and managing feelings. we talked about the social worker mary, mary had spoken to dr. barry at their team meeting, she’d told her we’d met and what she’d been helping me with. so then we talked a little bit about the funding I applied for and that was an interesting conversation. i told her I’d asked mary to help me apply for more PA hours. it was a good apt. I forgot that I was due my depo injection today so didnt bring it with me. so now next tuesday I have to go to the clinic so the nurse who gives the depos can give me my shot.
carol anne

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Omg guys its morning already?

its morning already? I cant believe it!
I didnt want to get up! I was having a nice dream! And then my alarm woke me!
Ug! I got up at 6:45, stupid o’clock! I’m leaving in 20 minutes to go to the hospital for my two apts.
First I will see Mark my OT. Then dr. barry. I hope it wont be too busy up there. Well I’ll be first there, so I shouldnt have too much of a wait!
Ok better run and take my morning meds now. Will write about both apts when I get home!

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napping

therapy today was hard. hard and draining. i wont write much about it here. i’ll let the people who had the session do it if they feel like it. but suffice to say i came home drained. had some food and lay down. promptly fell asleep and napped all afternoon. now its gone 8 pm and i probably wont sleep for the night. i just couldnt seem to get up each time i woke. i did get up to feed nitro. i got up to get a drink and let him out but that was about it. eventually i did wake at like 7:45 and got up then. i really shouldnt do this because my sleep pattern is all wrong now. but i guess it doesnt matter too much. i havent got much on tomorrow. i do have volunteering but thats all that i have on so if i am up all night i guess it really doesnt matter.
carol anne

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