Updating on baby josh’s progress

So I have a further progress update on how baby Josh is doing.

Some of his tests came back, and it wasn’t good news.

He was born without the glands that produce hormones, this is going to obviously cause him huge issues. The doctors put him on medication, and he’ll be on it for life.

Without this medication, he wouldn’t produce any hormones, so he wouldn’t grow.

They still don’t know if he’s deaf, or blind. But they do know that his level of downs syndrome is the most severe one that there is.

Its all so sad. One positive is that he’s feeding better now. He’s taking a few ounces at a time now. It exhausts him, just the action of sucking the bottle. But he’s doing it and that’s really positive.

He’s a little fighter. Please continue to keep him in your thoughts and prayers, there is still a very long road ahead for him and his parents.

Monday update

what a day! I’m absolutely shattered! But there is no sign of sleep coming for me!
We had a very intense therapy session yesterday. I dont want to talk about it yet. I will soon but not right now. But needless to say we were wrecked after it. Totally exhausted. But thank god for eileen. She got us through in one piece, and I was able to go work in the afternoon.
Work was good. I had a new list of clients to call. My shift went really well. I work again today, its now almost 5 AM. I dont know how I am supposed to get through today. I havent been able to rest, but I did rest in the evening yesterday, so I did get a little bit of rest.
I’ve been playing around with my macbook. I sorted out the issue with me muting the speech on it, so I’ve been playing with it trying to figure stuff out on it. I was trying to make a video earlier for my youtube channel but I couldnt do it and I got frustrated with it. I could record but when I tried to stop the recording it was acting up and I wasnt able to successfully upload the video either.
I’ll try again tomorrow. In the meantime I made a video on my phone.
My PA frances will be here at 9 AM today. We’re going to do some housework. I also have a guy coming to service my boiler, and I have the pharmacy guy coming with my meds. I specifically told the guy whose servicing my boiler to come in the morning, so that frances would be there, as I dont feel comfortable having someone in the house and me being on my own with them just because I cant see and I’m not ok allowing strange people in the house.
So how has your Monday been? Good? Bad? In between?

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Health update…May be TMI for all the men out there

So I got no sleep last night. I’ve been worrying about a rash I found. I found a rash underneath my breasts, its red and angry looking. Its itchy now too, which is wasnt last night. I asked on my did email group and some friends told me it could be yeast growing, or it could be the washing detergent I am using or who knows, but I guess it could be a million and one things. All I know is that underneath my breasts is sore, tender to the touch, and red and angry looking. I put medicated powder on it before bed last night, its called caldesine powder. It dried it out, but this morning its still there. So I asked mom, and she gave me the name of an antifungal cream used to treat bacterial infection in the skin. I’m not sure thats what it is, but it cant hurt to try it out. I cant go get it today, but I’ll have my PA Frances pick it up for me tomorrow. In the meantime I’ll put that medicated powder that I have on it. Has anyone ever had anything like this? What did you do to fix it and what did it end up being? I’m pretty sure its from a build up of sweat. I do shower every day, and I always dry myself well afterwords. So I am really not sure why this is happening. I was beginning to get really anxious, I thought I may have bed bugs, or some sort of illness, but its just in one small area and not spreading, so I dont think its anything like that. Alls I can say is thank god for mom! Mom helped alleviate my fears!

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Update on Nitro

We’re just home from the vets appointment, nitro was a really good boy. He hated it there though and couldnt wait to get out the door! As I brought him in when the vet called us he ran towards the front entrance, it was very funny, also, before we went in when we were sitting in the waiting area he got all panicky and started pawing at me and then trying to jump up on my PA’s shoulders, well he was trying to put his two paws up on her shoulders.
The vet did give me a lecture about his weight. She said he needs to lose some. He hadnt lost anything since he’s been there 3 weeks ago. He’s still 40 KG which is about 84 pounds, which is waaaay too much as he should be only weighing about 72 pounds.
She gave me more eardrops for him, she said his ears do look cleaner but they are still a little mucky especially the left ear, so she told me to use them for another two weeks, and she also told me to also clean his ears twice a week. She also gave me flea and worming treatment for him.
Overall it was a good visit, minus that lecture I got. I had to come home and phone my dad, and explain to him that he needs to just cut out giving Nitro treats completely, as the vet said if Nitro doesnt lose some weight he’ll get slower faster, and his legs will stiffen up and he’ll go lame, and be unable to move around. I dont want that for him so I need to get the weight under control.
We have to go back in a month to check his ears again and also to check to see if he’s losing any weight. I hope by then he will have lost something.

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Follow up vet visit for Nitro

Nitro is going back to the vets tomorrow. He has a follow up appointment to check his ears are ok. He has recently been on ear drops for an infection. I think he’s doing a lot better, his ears seem a lot cleaner, he is shaking his head less often, he seems to be happy, and the infection seems to be gone. The drops did the trick. They were really good and if the vet wants to prescribe another course tomorrow I’ll take them. I want to keep his ears as clean as I can. I hate that he constantly has to deal with ear infections. It cant be very comfortable for him. Other than his ears, everything is fine. He’s healthy, and happy. I am wondering how he’ll be at the vets office tomorrow. He hates the vets office. He always tries to pull me towards the door when she calls us in. He is always nervous and panting a lot, and cant wait to get his paws out of there once she’s done. He literally runs for the door when we’re done. I hope he’ll be ok while we’re there. Fingers crossed. After tomorrow I’m hoping he wont have to go again for a few months. I need to buy his worming tablets and flea treatment tomorrow also. I never did that the last time I was there. If you could, please send nitro positive thoughts for tomorrow. I’ll keep everyone posted on how he does there and will update after we’ve been.

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Friday chatter!

I am so thankful its friday!
I got up very early. I had a fantastic nights sleep. I am also so thankful for that fact. I was up at 6:30, and I hopped in the shower! I felt so good after my shower! Its a warm day here, and it just felt so good to wake up and get in the shower right away!
I’ve had a nice chilled morning, its been relaxing. I ate breakfast, was online for a while, and am now drinking some coffee, before I get ready for work!
I’m also waiting for my meds to be delivered. My dads gone out for a while, and I am here with the dogs, but I think my dad will be back before I have to go to work.
I’m looking forward to going in to work today. I didnt go in on tuesday, so I am really looking forward to going in today. I’m glad I skipped it on tuesday, I just wasnt in a place emotionally to go in, so the easiest thing was to not go, and take care of my own mental health.
Now that I’ve done that, I will be able to be more available to my clients.
Eileen texted me last night, she’s still stuck out in spain. She doesnt know when she’s going to be coming home, she said she’d keep me updated, wich I am thankful for.

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So glad I didn’t go

I am so so glad I didn’t go camping with my mum and my sister. I just spoke to my mum. She said there are tons of wasps around. She also said there were tons of flies, York, I don’t think I would cope. I hate anything to do with bugs, flies wasps bees et cetera. I think I totally freak out.

She said the weather where they are as hot today and it’s causing a lot of wasps to be around when they are eating and stuff. Sounds horrible to me. I’m really glad I’m at home and indoors. This is why I don’t go out too often in the Sun especially in the summer months like August and September when the wasps and bees, well not so much please, but wasps or at their highest. They’re everywhere then.

They’re having fun though and I’m glad for them. I’m just delighted I’m not there with them.