So I have a further progress update on how baby Josh is doing.
Some of his tests came back, and it wasn’t good news.
He was born without the glands that produce hormones, this is going to obviously cause him huge issues. The doctors put him on medication, and he’ll be on it for life.
Without this medication, he wouldn’t produce any hormones, so he wouldn’t grow.
They still don’t know if he’s deaf, or blind. But they do know that his level of downs syndrome is the most severe one that there is.
Its all so sad. One positive is that he’s feeding better now. He’s taking a few ounces at a time now. It exhausts him, just the action of sucking the bottle. But he’s doing it and that’s really positive.
He’s a little fighter. Please continue to keep him in your thoughts and prayers, there is still a very long road ahead for him and his parents.
I just found out some sad news about baby josh, my cousins little boy. He’ll be three weeks old on Tuesday. They did the heel test, that babies get when they’re born, 3 times now, and on Monday they’ll be doing it a fourth time. The reason being that his bloods and that test, showed up some abnormalities with his thyroid gland, the levels of something are extremely high, and doctors have said due to this he is going to have a lot of issues. He could be severely brain damaged, he could be blind, deaf, he also has the most severe level of downs syndrome possible. The tests for that already came back positive. If he’s severely brain damaged, he probably wont survive, but the doctors really aren’t sure, his digestive system is also effected, when he takes a feed, he is exhausted, and sleeps for a long time, the mere fact of taking the bottle exhausts him. The doctors have said that if any of us are going to come into contact with him that we need to have the flu jab. They’re going to put him on medication for 3 weeks, to try to calm down the levels of whatever it is in his thyroid gland that’s high. Then, after 3 weeks he has to go to Dublin, to the big childrens hospital up there for a deep scan, a scan where they’ll put radiation into his neck. Its really sad news. I’m heartbroken for my cousin. If you pray please pray for their family, either way the outcome for him wont be great, no matter what happens. All we can do now is hope. Hope for the best for him.
Prayers and supportive thoughts would be very much appreciated.
This is baby Josh with his brother Jake and his sister Ava.
His brother Jake is eight and has autism. His sister Ava is five.
Here they are holding him, hope you enjoy these pictures.