Updating on baby Josh

So my cousin josh, who I told you yesterday had pneumonia. Well the tests came back and he has micro plasma pneumonia, thats the type he has, which is very common in downs syndrome kids. They’ve put him on antibiotics, and he’s starting to improve a tiny bit. He’s still on oxygen, and still being tube fed, although today they did give him a bottle, which he was able to take and keep it down. The doctors said they have to do that because if they dont he might forget how to suck, and his muscles are quite weak to begin with. Thanks for all of the prayers and support. I know they’ve helped. Hopefully he’ll keep getting better as the days go on. Please keep praying for him and for his recovery.

Prayers needed please

Can you all pray for my little cousin Josh? He’s my cousins child. He has downs syndrome, and last night he was sent into hospital, because his breathing became difficult, and his oxygen levels dropped. Tests were done, and this evening the results came back. He has pneumonia. He’s pretty unwell with it. He’s vomiting every time they give him the oxygen. He’s only 5 months old. His heart is already weak since he has a hole in it. Please pray for him or keep him in your thoughts. I’d appreciate it very much.

Updating on baby josh’s progress

So I have a further progress update on how baby Josh is doing.

Some of his tests came back, and it wasn’t good news.

He was born without the glands that produce hormones, this is going to obviously cause him huge issues. The doctors put him on medication, and he’ll be on it for life.

Without this medication, he wouldn’t produce any hormones, so he wouldn’t grow.

They still don’t know if he’s deaf, or blind. But they do know that his level of downs syndrome is the most severe one that there is.

Its all so sad. One positive is that he’s feeding better now. He’s taking a few ounces at a time now. It exhausts him, just the action of sucking the bottle. But he’s doing it and that’s really positive.

He’s a little fighter. Please continue to keep him in your thoughts and prayers, there is still a very long road ahead for him and his parents.

Baby Josh update sad sad news

I just found out some sad news about baby josh, my cousins little boy. He’ll be three weeks old on Tuesday. They did the heel test, that babies get when they’re born, 3 times now, and on Monday they’ll be doing it a fourth time. The reason being that his bloods and that test, showed up some abnormalities with his thyroid gland, the levels of something are extremely high, and doctors have said due to this he is going to have a lot of issues. He could be severely brain damaged, he could be blind, deaf, he also has the most severe level of downs syndrome possible. The tests for that already came back positive. If he’s severely brain damaged, he probably wont survive, but the doctors really aren’t sure, his digestive system is also effected, when he takes a feed, he is exhausted, and sleeps for a long time, the mere fact of taking the bottle exhausts him. The doctors have said that if any of us are going to come into contact with him that we need to have the flu jab. They’re going to put him on medication for 3 weeks, to try to calm down the levels of whatever it is in his thyroid gland that’s high. Then, after 3 weeks he has to go to Dublin, to the big childrens hospital up there for a deep scan, a scan where they’ll put radiation into his neck. Its really sad news. I’m heartbroken for my cousin. If you pray please pray for their family, either way the outcome for him wont be great, no matter what happens. All we can do now is hope. Hope for the best for him.
Prayers and supportive thoughts would be very much appreciated.
Thanks guys!

Update on baby Josh!

Baby josh is coming out of hospital either tomorrow or Friday!

He’s now feeding every 3 hours. He’s only taking small amounts but he’s feeding! He’s making good steady progress! The doctors are very happy with him!

The consultant said there is no point in him being in the hospital, he doesnt need to be there! All of the test results havent come back yet from dublin, but the doctor said they were happy to let him go home, and when each result comes in, they’ll call a meeting with his parents.

We’re all so pleased that he’s making progress and can go home! He really is a little fighter!

Only time will tell how bad his hearing loss is, the hole in his heart is, and whether he can see or not. Also, his feet are turned in so there is also that to contend with but the doctors say physio may rectify it! Only time will tell if that is the case or not though!

For now he’s getting to go home to his mom and dad, brother and sister!
He’s a miracle!

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Happy news!

Guys,
It looks like all the prayers you’ve been sending to me regarding my cousin and her little boy are being answered! Thank you so, so much!

He’s doing a little better tonight. He took 35 ML of his bottle. He will have heart and lung issues, but so far he’s responding well to treatment! He’ll be in the neonatal for a while though. Tomorrow he’s having a heart scan to see how severe the heart issues might be.

My cousin is more accepting tonight of his disability. She’s heartbroken but she’s coping well. The neonatal nurse gave her a card with some phone numbers of charities that deal with downs syndrome so she has some support when she leaves the hospital.

Nobody is allowed to see the baby right now, except the parents. No one is allowed into the neonatal unit.

I’m so happy things are looking up! Its good news!

I appreciate all of the kind thoughts and prayers that you’ve all sent! They are really helping!

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Sad news about my cousins new baby

Remember a few days ago I told you my cousin christine had a baby? And we all thought everything was fine with them? Well it wasnt.

When the baby was born he looked ok. But he didnt make any sound. He cried I think at birth but then once in the ward afterwords he never made a sound, or moved. He had tiny ears, and he wasnt feeding properly.

The doctors came that evening, and looked him over. It turns out he has downs syndrome. He is also deaf. His ear canals arent developed properly.

His heart and lungs are very weak too. He’s gone to neonatal and is in an incubator now. We dont know if he’ll make it. We’re hoping he will but literally its hour to hour. He’s very very ill.

If you pray please pray he’ll pull through.

We’re all devastated. Its awful. How something as happy as the birth of a new baby can turn into heartache within hours. Its so so sad.

Please pray he’s going to make it. I know he’s badly disabled, but my cousin can deal with that. We just want him to live.

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