It looks like all the prayers you’ve been sending to me regarding my cousin and her little boy are being answered! Thank you so, so much!
He’s doing a little better tonight. He took 35 ML of his bottle. He will have heart and lung issues, but so far he’s responding well to treatment! He’ll be in the neonatal for a while though. Tomorrow he’s having a heart scan to see how severe the heart issues might be.
My cousin is more accepting tonight of his disability. She’s heartbroken but she’s coping well. The neonatal nurse gave her a card with some phone numbers of charities that deal with downs syndrome so she has some support when she leaves the hospital.
Nobody is allowed to see the baby right now, except the parents. No one is allowed into the neonatal unit.
I’m so happy things are looking up! Its good news!
I appreciate all of the kind thoughts and prayers that you’ve all sent! They are really helping!
Remember a few days ago I told you my cousin christine had a baby? And we all thought everything was fine with them? Well it wasnt.
When the baby was born he looked ok. But he didnt make any sound. He cried I think at birth but then once in the ward afterwords he never made a sound, or moved. He had tiny ears, and he wasnt feeding properly.
The doctors came that evening, and looked him over. It turns out he has downs syndrome. He is also deaf. His ear canals arent developed properly.
His heart and lungs are very weak too. He’s gone to neonatal and is in an incubator now. We dont know if he’ll make it. We’re hoping he will but literally its hour to hour. He’s very very ill.
If you pray please pray he’ll pull through.
We’re all devastated. Its awful. How something as happy as the birth of a new baby can turn into heartache within hours. Its so so sad.
Please pray he’s going to make it. I know he’s badly disabled, but my cousin can deal with that. We just want him to live.
I created this new list I called it disabled people united. I am hoping it will be a success. Its for anyone with any type of disability to connect and get give support, make new friends, discuss things about disability raise awareness, etc.
anyone with physical, sensory, leanning, or any type of disability can join, also those with chronic pain, mental illnesses, or any type of hidden or invisible disability are eligible to join.
So if you’d like somewhere to talk about things, make new friends, or just raise awareness of disabilityin general, come join us.