Baby Josh update sad sad news

I just found out some sad news about baby josh, my cousins little boy. He’ll be three weeks old on Tuesday. They did the heel test, that babies get when they’re born, 3 times now, and on Monday they’ll be doing it a fourth time. The reason being that his bloods and that test, showed up some abnormalities with his thyroid gland, the levels of something are extremely high, and doctors have said due to this he is going to have a lot of issues. He could be severely brain damaged, he could be blind, deaf, he also has the most severe level of downs syndrome possible. The tests for that already came back positive. If he’s severely brain damaged, he probably wont survive, but the doctors really aren’t sure, his digestive system is also effected, when he takes a feed, he is exhausted, and sleeps for a long time, the mere fact of taking the bottle exhausts him. The doctors have said that if any of us are going to come into contact with him that we need to have the flu jab. They’re going to put him on medication for 3 weeks, to try to calm down the levels of whatever it is in his thyroid gland that’s high. Then, after 3 weeks he has to go to Dublin, to the big childrens hospital up there for a deep scan, a scan where they’ll put radiation into his neck. Its really sad news. I’m heartbroken for my cousin. If you pray please pray for their family, either way the outcome for him wont be great, no matter what happens. All we can do now is hope. Hope for the best for him.
Prayers and supportive thoughts would be very much appreciated.
Thanks guys!

Tour of the preschool I’ll be working at

this morning i went to look around the preschool that i’ll be doing my work experience placement at.

i met the manager, anita, who is my supervisor, I met sonia the preschool teacher I’ll be working with, and I met fiona, the mobility and orientation officer.

i sat and chatted with anita for a while about the placement. she told me about the kids. there will be five kids…all of whom have special needs. she only told me about two of the kids additional needs, because we didnt have time to go through everything. of the two she told me about, one has a visual and hearing impairment, and one has downs syndrome.

she said there are also a set of twins, and she did tell me they are very active, and so can be pretty full on. she told me that the little boy who has downs syndrome, he has a habit of pulling peoples hair, so i will need to tie back my hair to prevent this.

she said some of the kids have behavioural problems. but she said sonia is very good with the kids and has a great way with them. for the first week or two i am to observe the kids and observe sonia and how she manages their behaviours.

anita said after the first few weeks i’d be expected to organise activities to do with the kids, i said i’d like to read to them, and that isnt going to be a problem, there are tons of braille books there. so that will probably be my starting off activity once i get a little bit familiar with the kids.

i had an O and M session and fiona orientated me around the room I’d be working in. its a really well equipped room, lots of toys, books, art supplies, etc. the chairs are all child sized, it will be a bit of an issue fitting in one lol. but i tried it out and i do fit so thats good.

they said if i feel overwhelmed at any point i can take a five minute break. anita also showed me where the fire exits were and what we needed to do if there was a fire.

i’ll have to bench nitro at reception, basically tie him on and leave him there until i am done in class. i did that today, i left him there and he was whimpering and pining for me. he’ll have no choice but to stay there and get used to it, he isnt used to me leaving him on his own a lot.

so i’m pretty pleased. everything went off smoothly. and i cant wait to start on friday.

just so your aware, any future entries where I reference my work experience especially entries to do with the kids where i mention names and behaviours and stuff will be passworded.
if you’d like to read them let me know, but if i’ve already given you my password then it will be the same one so there wont be a change in password or anything.
so if you dont have it, and want to read about my experiences working with the kids, email me for it.
carol anne