So I have a further progress update on how baby Josh is doing.
Some of his tests came back, and it wasn’t good news.
He was born without the glands that produce hormones, this is going to obviously cause him huge issues. The doctors put him on medication, and he’ll be on it for life.
Without this medication, he wouldn’t produce any hormones, so he wouldn’t grow.
They still don’t know if he’s deaf, or blind. But they do know that his level of downs syndrome is the most severe one that there is.
Its all so sad. One positive is that he’s feeding better now. He’s taking a few ounces at a time now. It exhausts him, just the action of sucking the bottle. But he’s doing it and that’s really positive.
He’s a little fighter. Please continue to keep him in your thoughts and prayers, there is still a very long road ahead for him and his parents.
Baby josh is coming out of hospital either tomorrow or Friday!
He’s now feeding every 3 hours. He’s only taking small amounts but he’s feeding! He’s making good steady progress! The doctors are very happy with him!
The consultant said there is no point in him being in the hospital, he doesnt need to be there! All of the test results havent come back yet from dublin, but the doctor said they were happy to let him go home, and when each result comes in, they’ll call a meeting with his parents.
We’re all so pleased that he’s making progress and can go home! He really is a little fighter!
Only time will tell how bad his hearing loss is, the hole in his heart is, and whether he can see or not. Also, his feet are turned in so there is also that to contend with but the doctors say physio may rectify it! Only time will tell if that is the case or not though!
For now he’s getting to go home to his mom and dad, brother and sister!
He’s a miracle!
Remember a few days ago I told you my cousin christine had a baby? And we all thought everything was fine with them? Well it wasnt.
When the baby was born he looked ok. But he didnt make any sound. He cried I think at birth but then once in the ward afterwords he never made a sound, or moved. He had tiny ears, and he wasnt feeding properly.
The doctors came that evening, and looked him over. It turns out he has downs syndrome. He is also deaf. His ear canals arent developed properly.
His heart and lungs are very weak too. He’s gone to neonatal and is in an incubator now. We dont know if he’ll make it. We’re hoping he will but literally its hour to hour. He’s very very ill.
If you pray please pray he’ll pull through.
We’re all devastated. Its awful. How something as happy as the birth of a new baby can turn into heartache within hours. Its so so sad.
Please pray he’s going to make it. I know he’s badly disabled, but my cousin can deal with that. We just want him to live.
This morning, we welcomed a new baby into our family, my cousin Christine had a baby boy. She is calling him Josh. He weighed in at 6 lb 8 oz. Isn’t he beautiful? She had an emergency Caesarian section after her waters broke last night late in the evening. Mum and baby are both healthy and doing well.
I am going to my cousins baby shower tonight. She’s 8 months pregnant, she’s due her baby at the end of september! She’s having a boy, but she doesnt actually know that, the only reason I know is her mother in law knows, and she told a few of us in the family so that we could get appropriate gifts for her. The gender reveal is tonight, at the baby shower, so she’ll know tonight what she’s having. I am excited to go to the baby shower, its my first time going to one. I think it will be a lot of fun. I got her some cute outfits for the new baby. Two different ones I bought. I am going to dress up nice, wear make up and all, so I will post pics later this evening before I go out. And I will probably take a bunch of pics at the baby shower too so will post a few when I get home.. The baby shower is in her motherinlaws house. I dont really know her motherinlaw, so I am nervous because I dont know that side of her family, but it will be fine, all of my aunts and my mom are going so I will be fine. I will just enjoy myself, my aunt is picking us up at 8, and I am sure we’ll have a fun time!
today I am going to a wedding. My cousin is getting married.
The wedding is in a very posh hotel in killarney. I’m going with my mom and sister, my sisters partner, and her two kids. We’re all staying over in the hotel tonight. It is going to be a fantastic day.
We’re driving there in a little while. I’m currently in the process of getting dressed, and putting on my make up and doing my hair.
Look out for some photos from me later on today! I’ll share some on the blog when I am able to get a few minutes to myself.
I wish you all a fab saturday!
My little cousin Jake made his first communion today. He’s 8. He’s autistic so his parents had it in the house. The after party I mean. I didnt go though. They were going to have a lot of junk food at it, like pizzas, and other fast food, and I didnt want to eat that. I didnt want to jepordise my weight loss. So I chose not to go to the party. Thats ok though. Instead I had my dad make me a pot of chicken curry and I ate thatj for dinner. And I have to say it was absolutely delicious.
At first I was just going to go to the church, to see him make his communion, and then not go back to the house for the party, but then I figured I wouldnt go to either one. So I sent his card with some money in it with my mom. I’ve talked to mom twice today, she said its all going off ok so thats good. I’m happy his special day is going well for him.