So I have a further progress update on how baby Josh is doing.
Some of his tests came back, and it wasn’t good news.
He was born without the glands that produce hormones, this is going to obviously cause him huge issues. The doctors put him on medication, and he’ll be on it for life.
Without this medication, he wouldn’t produce any hormones, so he wouldn’t grow.
They still don’t know if he’s deaf, or blind. But they do know that his level of downs syndrome is the most severe one that there is.
Its all so sad. One positive is that he’s feeding better now. He’s taking a few ounces at a time now. It exhausts him, just the action of sucking the bottle. But he’s doing it and that’s really positive.
He’s a little fighter. Please continue to keep him in your thoughts and prayers, there is still a very long road ahead for him and his parents.
I just found out some sad news about baby josh, my cousins little boy. He’ll be three weeks old on Tuesday. They did the heel test, that babies get when they’re born, 3 times now, and on Monday they’ll be doing it a fourth time. The reason being that his bloods and that test, showed up some abnormalities with his thyroid gland, the levels of something are extremely high, and doctors have said due to this he is going to have a lot of issues. He could be severely brain damaged, he could be blind, deaf, he also has the most severe level of downs syndrome possible. The tests for that already came back positive. If he’s severely brain damaged, he probably wont survive, but the doctors really aren’t sure, his digestive system is also effected, when he takes a feed, he is exhausted, and sleeps for a long time, the mere fact of taking the bottle exhausts him. The doctors have said that if any of us are going to come into contact with him that we need to have the flu jab. They’re going to put him on medication for 3 weeks, to try to calm down the levels of whatever it is in his thyroid gland that’s high. Then, after 3 weeks he has to go to Dublin, to the big childrens hospital up there for a deep scan, a scan where they’ll put radiation into his neck. Its really sad news. I’m heartbroken for my cousin. If you pray please pray for their family, either way the outcome for him wont be great, no matter what happens. All we can do now is hope. Hope for the best for him.
Prayers and supportive thoughts would be very much appreciated.
This is baby Josh with his brother Jake and his sister Ava.
His brother Jake is eight and has autism. His sister Ava is five.
Here they are holding him, hope you enjoy these pictures.
Baby josh is coming out of hospital either tomorrow or Friday!
He’s now feeding every 3 hours. He’s only taking small amounts but he’s feeding! He’s making good steady progress! The doctors are very happy with him!
The consultant said there is no point in him being in the hospital, he doesnt need to be there! All of the test results havent come back yet from dublin, but the doctor said they were happy to let him go home, and when each result comes in, they’ll call a meeting with his parents.
We’re all so pleased that he’s making progress and can go home! He really is a little fighter!
Only time will tell how bad his hearing loss is, the hole in his heart is, and whether he can see or not. Also, his feet are turned in so there is also that to contend with but the doctors say physio may rectify it! Only time will tell if that is the case or not though!
For now he’s getting to go home to his mom and dad, brother and sister!
He’s a miracle!
I am late to the party this week but…I will participate anyway!
And my titbit of wisdom for this week?
Never underestimate the power of positivity and prayer!
My blogging buddies have been amazing over the past 24 hours, praying for my cousins little boy to pull through!
Now we’re hopeful he might!
My mom pulled a card from my deck of angel cards yesterday and, it was spot on!
The angels are looking down on us!