Update on My dads UC

my dad went back to see his gastroenterologist today. he has UC and he had recently had a kolonoskopy to check where things were at with it.

Unfortunately the news wasnt good. she told him his bowel is chronically inflamed. she said there is no cancer there which is a positive, but during the last two kolonoskopys he’s had polyps removed. she said the form of UC he has is very rare and very severe.

they arentsure what treatment to put him on. she said he’d have to go for another sorta scan, a sorta x-ray and scan done at the same time, to monitor his bowel motions. that wont be happening for a month though. in the meantime she gave him another laxative to try. He also has to go for a liver ultrasound in september.

she said there are injections he can go on every two weeks to reduce the inflamation but they have terrible side effects including breaking down his immune system and they can also cause skin cancer and other forms of cancer. so they are waiting to see what the scan shows before thinking about putting him on the injections.

he also has to have physio to retrain his bowel. there was talk of them operating on him to fit a stoma bag but now he thinks that isnt going to be happening, she wants to try every other form of treatment first.

Its a worrying time for all of us. My dad is a little depressed and his mood is fluctuating up and down and he is taking things out on the rest of the family. I suppose that is to be expected but its not nice and he is not pleasant to be around right now.

Author: manyofus1980

I am a woman in my mid 30's. I'm blind and I have dissociative identity disorder, I also have complex PTSD. I blog about my life with these disorders. I live in Ireland.

4 thoughts on “Update on My dads UC”

  1. Wow, sorry to hear this. I hope they can find a good treatment for this. I also hope this encourages him to cut back on his drinking as that can’t be helping. I don’t envy your mom who has to be with him 24-7 as she probably the brunt of his moodiness. I’ll be praying for the bunch of you.

    Liked by 1 person

  2. I’m so sorry Carol Anne…none of that is easy. Remember that it is ok to have the feelings you are experiencing, both good and bad, happy and sad. I’m sorry it has been so hard for all of you and your family. Sending safe hugs to all inside who would be happy to receive them.

    Liked by 1 person

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