Talked with my advocate sharon very frustrated limited options available to me it seems

so i’m working with an advocate, her name is sharon. i’ve been working with her for the past couple of months, she’s been helping me apply for pa hours, try to get me services from our local health executive service. of course thats not going too good. twice we’ve applied, twice we’ve been declined. the last time i got denied i called sharon and also sent her an email. she took a while to get back to me but finally today she did. but the news wasnt great. she said other than waiting a while and trying to reapply again, there really is little other than that that we can do. she did tell me about this service that operates to help people start up their own business to employ their own pas. basically the services applies for your funding from the HSE to be transfered over to you and you then go and employ people, your in charge of paying them, basically your managing your own service. however i dont think that would suit me. my mental illness makes it very challenging, especially the having did and dissociation. I just dont think i’d do well trying to run a business, i think i’d need a lot of support and i just dont have people who are in the know about taxes and all that sorta thing. sharon kept telling me that she thought i had a lot of skills and not to underestimate myself. but i dont think she gets the severity of my mental illness. I just dont think I could do it. Its not for me. Maybe down the line I could consider it who knows but not right now. Sharon said she has to close my case now because there is little else she can do, and she is going out on maturnity leave at the end of this month. However she did say I was welcome to recontact the advocacy service if I needed to in the future. Its very disappointing. She told me to talk to my mental health team again, see what their thoughts are. I think I’ll have to have a good long conversation with dr. Barry about my needs and about reapplying for services. It seems like nothing we do is working though, we’ve sent numerous letters and reports to them to be considered and still nothing has come out of it. So yeah i’m very disappointed to say the least. But I’m not giving up. I have to keep on trying because I desperately need the support. 6 hours of pa services a week just doesnt cut it. Its way too little and I need a lot more help with the running of my home, and with going to appointments and doing social activities.

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Author: manyofus1980

I am a woman in my mid 30's. I'm blind and I have dissociative identity disorder, I also have complex PTSD. I blog about my life with these disorders. I live in Ireland.

4 thoughts on “Talked with my advocate sharon very frustrated limited options available to me it seems”

  1. Yuck, I am so sorry to read this! And yet it feels familiar, based on my own experience in the U.S. trying to get services for my son with autism. We’ve worked with advocates from the state and also that I’ve paid privately, and nothing has really changed. He’s been eligible for support services he never wants/uses but then not eligible for things that actually help him (the fact that he does well with them is used as “proof” that he doesn’t need them). Or he gets put on waiting lists that go on for years. It’s incredibly frustrating. I don’t know how to change the system, but it’s really not working for people who have genuine needs.

    I’m sorry that Sharon can’t be more helpful to you. I wonder if she’s giving up a bit easy because she’s about to go on leave anyway? Maybe you could try another advocate?

    I get what you mean about the run your own business bit. It sounds pretty complicated given your life situation. The whole point of services should be that they make your life easier, right?

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    1. I think that’s it. I think she is giving up too easily but probably because she’s going on leave. I talked with Karen Doctor Barry social worker. She did say the running of my on business would be too complex which I agree with. We’re not going to give up that easy were going to keep trying to get services

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    1. I think it’s more that they don’t have hours to give me, they have a lot of people want hours and not many hours to give people. At least I’m hoping that’s what it is and that they just don’t think that I don’t need them

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