Bad news about respite

so two weeks ago i had an assessment to see if I was eligible to go on respite. At the time of the assessment I had a good feeling about it. I felt like the manager of the place was positive and I thought I may actually get to go on respite there.
Unfortunately this wasnt the case. I got some bad news today about it.
Basically, I had heard nothing and so I called the manager this morning. She was in a meeting when I called but she called me back. She said I should have gotten a letter but I hadnt got one.
She told me that the committee had decided that I didnt meet the criteria, why? Because I was too independent. Because I lived alone and I didnt have a carer they decided my need wasnt high enough. Can you believe that?
I couldnt. What got to me was this. People advocate for disabled people to live independently and be as independent as possible. But then when you look for help you cant get it. Its maddening.
So thats it. No respite. I dont think I can appeal it either. I think the decision is final.
The only positive is that there is one more place I can try. The place I have left to try isnt as strict as this other place seemed to be. But there is a lengthy waiting list for this place. So I could be waiting for a while.
I’m frustrated and annoyed and a little upset that I cant get respite. I was kind of counting on it for certain times during the year, like difficult ritual dates etc. It would have been nice to get a break then and go somewhere else for a change of scenery.


Author: manyofus1980

I am a woman in my mid 30's. I'm blind and I have dissociative identity disorder, I also have complex PTSD. I blog about my life with these disorders. I live in Ireland.

8 thoughts on “Bad news about respite”

    1. Really? I didn’t know that that’s out rages if you ask me, you should be allowed to stay on disability once you are on it. Unless of course you want to come off of it and get a job or something, they make it so hard for disabled people


  1. yes that kind of thing is too common. when i was suicidal at the start of the year and was afraid to live back alone on discharge and wanted into a group type home, they told me the same thing. ridiculous.

    Liked by 1 person

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